Céline Dion’s rare glimpse into life with incurable condition

By
April 16, 2024

 

Céline Dion is opening up about life after receiving an incurable diagnosis in a new documentary.

The 56-year-old Canadian singer – who announced in December 2022 she has stiff person syndrome, a rare neurological disorder that makes torso and limb muscles alternate between spasms and rigidity – took to Instagram overnight to announce the release date of her documentary, I Am: Céline Dion.

With her message, she also shared a raw, behind-the-scenes photo from the documentary, which was filmed over a year.

Watch the video above.

Celine Dion
Céline Dion has shared a rare glimpse into life with an incurable diagnosis with the announcement of her documentary I Am: Céline Dion’s release date. (Amazon/MGM Studios)

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“🚨📅 Get ready! [Amazon MGM Studios] announces release date to the highly anticipated documentary! I AM: CELINE DION will be streaming globally on [Prime Video] starting June 25,” Dion’s Instagram post, shared with her 6.4 million followers, read.

“Directed by Academy Award nominee Irene Taylor, I AM: CELINE DION gives us a raw and honest behind-the-scenes look at the iconic superstar’s struggle with a life-altering illness.

“Serving as a love letter to her fans, this inspirational documentary highlights the music that has guided her life while also showcasing the resilience of the human spirit,” the message, signed off with ‘Team Céline’, concludes.

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Celine Dion releases feature-length documentary, I Am: Celine Dion, covering her stiff person syndrome battle.

Céline Dion opens up about health battles in new documentary

It comes after Dion announced the documentary’s production earlier this year, writing in a statement at the time, “This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me.”

“As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans.

“During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.”

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Celine Dion
Dion made a rare public appearance at the Grammys in early 2024. Here she is pictured backstage with stylist Law Roach. (Instagram)

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Dion announced in December 2022 she had been diagnosed with stiff person syndrome, revealing it would mean she would have to step back from performing.

“Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to,” she explained to her fans in a statement.

Since then, Dion has stopped touring and performing live, and she rarely makes public appearances.

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Celine Dion and Taylor Swift
Dion presented Taylor Swift with Album of the Year. Here they are pictured backstage. (Getty Images for The Recording A)

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In February, Dion surprised fans when she stepped onto the stage at the 2024 Grammy Awards to present Album of the Year to Taylor Swift.

She has also been seen at two hockey games in recent months.

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